Do people really know what it means to live with epilepsy? Or do they think it’s just about seizures and loss of consciousness? I’ve been asking myself this question since 2008, when I was diagnosed with epilepsy. What does it really mean to be on the web with this condition? It’s not just about seizures—it’s about eyes moving up and down, exhaustion, and headaches. I’ve often struggled to find information on websites while trying to avoid flashing banners or low-contrast elements. Being a community also means thinking about accessibility from a human perspective, listening to the needs of people with chronic illnesses. It means realizing that it’s time to prioritize a navigable website over just a beautiful one. Through my story, I will share the most basic information about designing for people with epilepsy, starting from a key principle: listening to their stories.
